Sunday, May 17, 2009
We had so much fun playing games, bouncing and jumping in the bounce houses, eating of course and meeting some old friends and making a few new ones. Though Devon and Miranda had the best time dancing.
We had a few tense moments. I was really worried about Emerson for a while we had several episodes of the monitor going off and his eyes getting a little dusky blue!
I think the best thing about this is getting to see a lot of the individuals with Down Syndrome, so many different stages, abilities and basically just a cool mixture of people.
It also helped cause Adrian has been asking a lot of questions lately.
This morning she informed me.....that she, Jordan and Emerson did not have down syndrome cause they all came from my tummy. True yes..... but not what I was expecting...... I thought she would follow it up with some profound statement.... but no, she then told me all adopted kid had down syndrome..... so the picnic did at least give Adrian and I chance to play...... who has DS and who doesn't and why (or how she knew).
I know this seems weird.... but she has been having a few issues at school and a lot of issues at home and is a lot more confused about what is going on with the "chromsomally" enhanced ones and always wants to understand why we do not get "the good parking space" when it is just her and me!
It is a wondrous thing that comes out of her mouth....usually before she inserts her foot!
Wednesday, May 13, 2009
STOP Here...... or
LONG STORY...... I cried today.....tears that only a "special" mom can have. I cried today because I was proud, happy, sad, amazed, joyful, and just plain beaming with pride when I watched them......both my beautiful.....Adrian and Melea.....as they graduated from kindergarten this afternoon.
Today started like usual.....OK sort of. My friends came and helped me get the kids ready for school .......still issues with the kids and Emerson all needing me .....(when will I learn how to nurse a kiddo.....carry his heart monitors....bathe the others and wait for the bus at the same time......thank heaven for friends!).
Differences included the fact that Adrian had laid out her clothes ....three days early! She picked out my clothes.....Emerson's & Jordan's outfits.....made sure she had invited every person she met in the last week......called her grandma and reminded her dad...about 20 times! She had been singing all the songs for me for over two weeks.....and like the wonderful sister that she is made sure Melea practiced many many times too.
I fight ...as usual....to get Melea to let me do her hair, make sure she gets her teeth brushed.... try to make sure she doesn't hug Emerson too hard and a little argument....doesn't want to practice her songs.....just wants to look in the mirror at her "bottom" oh does that fascinate her!
Adrian got up early.....in the shower before Tammy & Angie got her. Adrian had me do her hair....put in her special bows.....wear perfume......she was so excited! Last thing she tells me.....on her way out the door is...."Mom, I love you so much.....but please make sure your armpits don't stink!"
"OK".....I reply....pretty much taken a back..... I forgot to notice she had no shoes on. Of
course Adrian was her usual creative self and decided that her beautiful burgundy suede boots would look so much better than her her pink dress shoes. (Angie did try to get her to wear the matching ones.... but Princess Grumpy was adamant about these....and I didn't notice till she marched in...Oh well!)
I actually was so surprised at her comment....I spend the morning questioning Dad, all the kid wranglers, Grandma and Jordan if I had forgotten deodorant in the last few weeks.! It really was bothering me.....I knew Adrian had been frustrated cause I have been wearing my painting /work outside in the yard clothes to Wal-Mart and Home Depot the last few times! SO I SHOWERED AGAIN!!!!!
I was amazed thinking back to all the IEP's, all the planning, the times I was sure she wouldn't walk, or wondered if the the failure to thrive was my fault, all the speech therapy sessions where she would not make a sound..... but that smile....I see her beautiful smile. I can hear her! Tears of amazement start to flow! She did it...though it was her way.....not the way I planned, not the way her teachers always wanted either. Why is this amazing...... well it is just like the rest of them.
Friday, May 1, 2009
So here are some shots from the year of all we have done at school with the kids with Daddy back filling with babysitting and working hard!
Wednesday, April 29, 2009
Saturday, April 25, 2009
I watch prices I watch numbers / counts on boxes...... I have eight mouths to feed and butts to diaper! I NOTICE and I am tired of it! Quit keeping the packages the same size and putting in less...... from cereal (yeah I know you just matched General Mills and others). I have put up with the disappearing diapers for a while and even the missing 48 wipes (8 from every package for about 2-3 weeks down from 80 to 72 then a huge new end cap saying more...we are giving you more now!
But yesterday you really made me mad! I will call again today when I finish this...... I am madder than when you got rid of the green (lime) flavored yogurt for 3 months when you put more of the ridiculously priced GoGurt and other espensive kid marketed brands! Madder than when you quit carrying equate bar soap!
You took a whole package of wipes out of the six pack in the parents choice! At first I just thought I got a defective package...... it shook....... I looked at the package....same size...... you didn't even try to hid it this time...... It just said FIVE.....440 wipes.......not the usual 6 pack.
There was an empty space.... someone else will notice......they have too..... it can't just be me.
OK it can Eric just opened it....I had to buy it.....we were out..... I guess that is how you get away with it...... you are our only choices if I need to keep our costs as low as they can go! But I a, noticing and keeping track and angry.......angry about the fact that this pack is missing.....angry about the fact in several weeks it "will suddenly" reappear as a gimmick to make you think you care about out needs and the fact that everyone is penny pinching.......and YOU ARE TRYING TO HELP US OUT! But I will remember.......
I wish I could boycott you..... I tried mad it 2 weeks and 5 days.....19 days...... oh yeah it did nothing in their bottom line.....made me completely sure I hated the generic diapers at Walgre&&^% and ended up costing me more money on just about everything! I am sure that you didn't even notice a dent in your bottom line...... (note I spend about $250 each week on food and other household items there).....but to me it is a huge amount.
Wal-M#$%@ was the second corporate brand my kids recognized (McDonald's being first).......My son Jordan & Adrian's could say it before Grandma and most of their siblings names.......it has become the generic term for "store" at our house like xerox...... but notice.... I am watching and I know and I am mad.
Raise the prices, but quite trying to make me think you are doing me a favor by giving me 8 more wipes or 2 more diapers or locating the missing 2 oz of generic Cheerios! The used to be there.....you made money when you took them away,,,,,,,,, GIVE THEM BACK!
Thursday, April 23, 2009
Today Devon got to go to the Special Olympic Track Meet. (Next week is Colin & Melea's) It was so much fun to get to spend the morning with him.....though I think the "spirits" were conspiring against me for the first 4 hours of my morning.......
- why did I ever let the kids (Colin & Adrian now do every day....some days so does Melea) start taking showers before me....... I WANT AN INSTANT HOT WATER HEATER!
- someone stole the shoes I wanted to wear (after I took the time to shave my legs)
- afternoon helper called in sick so I am panicked that I can't go ....but morning helper says she can stay till at least 2 pm! THANK HEAVENS
- Melea tries to play sick till she realizes that I am taking Emerson with me..... so the plan of staying home to play with the baby....not working as she planned.... so she runs off to school to torment the staff there!
- Grandma still in hospital and I am worried about her....
- I finally get there.....they make us park at another school across a street I would not have crossed with "normal" children....let alone Devon....thank heaven I was running so late.....I sent him on the bus!
- There was also a huge huge huge set of steps and I could not carry the stroller, the diaper bag, Emerson's monitors, camera , our lunch up those stairs.....and I forgot I had Emerson too!
- Jordan broke my drip coffee pot last week, and out of instant coffee too....do they make IV coffee? URGH!!!!!!!!
- I really do like going to Special Olympic events.....it is so nice to see so many happy faces and smiles....it can and always cheers me up....worked really well after this morning and my lack of coffee!
- I finally found Devon and met his helper for the day. Her name was Katie.....she seemed nice and Devon was holding her hand and smiling (though he would do this with Satan and any person....no ability to distinguish) But she seemed to have the energy that Devon needs .
Most people think I am neurotic about going to all these event.....but I taught High school for a while and it is a 50 /50 chance at getting a "not so interested" helper.......and all my kids run! so I get worried....OK down right scared!
But no problem with our helper today......she was attentive to me, Devon and Devon's school staff as they explained his needs and issues (OK I was a little worried when i first saw her...and no staff....but boy did she do great!)
We got to play games.....I swear all the clubs at this high school participated....at least 20 carnival games.....Devon brought home six bubble containers and all kids of carnival treasures (OK junk that Adrian can try to feed Emerson tomorrow......). But it was fun to watch Devon attempt to play the games and to see him brighten up when Melea and Adrian and he were going through the bag when he got home.
Devon gets to compete in "challenges" to build his skills....like hopping, and jumping, and throwing tennis balls and running to someone (his new pretty friend Katie). It might seem like a waste of time to some people....but sometimes just watching your son do a little bit with a stranger ....it is amazing.
To stand back and see how that smile can bright the world. To spend a minute not panicked about hospital bills or balancing a check book or wondering about how or when the TV will have some "good news" about the economy. That is what I got this morning!
Three and half hours of time with Devon (Emerson was along for the ride....and a small red nose....sunscreen must have rubbed off). We played we hugged each other, a big red dog, played clap clap with Spiderman & Wolverine, were timid with Captian America and just hugged the heck out of the "Tiger".
We through some pom poms, blew bubbles, picked ducks & fish out of water, got matching tattoos, got covered in Peanut Butter & jelly and watched him drink a full carton of chocolate milk! Then we ran some, jumped some and threw some balls. We even crammed ourselves into a port-a-potty together for a diaper change! (Katie held Emerson....thanksso much!)
I want to thank all the kids and people that made this day special....the planning is not so easy to pull off an event like this! These young adults worked hard to put the special in "Speacial Olymipics"! From the girls dress up int heose hot costumes on the 80 degree day, to the ones helping me with parking (even if I grumbled)
I had a wonderful time. It was amazing! Devon is Devon.....I keep hoping for a miricle or breakthrough or something, but I spend most of the time thinking he is never going to change.
Do not take that as depressed as it sounds. I loved seeing all the smiles he gave to people today and all the hugs. I loved seeing how much he has grown this school year. And after spending the day with him today. I am sort of happy that he hasn't changed to much .....yet!
I think for him..... the world will always revolve around him and what "Devon "wants...... but today he wanted to share it with me & Katie and it sure was "totally awesome"!
ps- I am feeling quite old all of a sudden! and wondering why two grown adults with college degrees can't make microwave popcorn with out burning it!
Wednesday, April 1, 2009
Cause you know having eight kids including the new baby....making painting so easy! Let us not forget that Adrian wanted to help which then involved a lot of wet wipes and Mr. Clean Eraser's and carpet cleaner (she stepped in the pink paint and the tracked it everywhere!)
Adrian just loves bright colors and putting as many together as humanly possible! She is so bright and cheery and her clothing shows that so I let her paint that in her room too!